National Epilepsy Week 2012

May 24, 2012 at 12:58 pm | Posted in Uncategorized | Leave a comment
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It’s currently National Epilepsy Week (20th-26th May 2012) and epilepsy organisation, Epilepsy Action, are using this week to raise crucial awareness of the neurological condition which affects over 600,000 people in the UK.

The theme to this year’s awareness week is achievement. Epilepsy Action are calling on epileptics to recall their proudest moments and most significant achievements to prove that epilepsy doesn’t have to stop people enjoying their life just like everybody else.

National epilepsy week

A whole host of epileptics have submitted their stories online. Their personal tales range from youngsters with epilepsy learning to swim, excelling at school and even sky diving! And adults achieving career successes beyond their expectations, having children and been able to take part in sporting activities after seizures, surgery and medication.

Each story is inspiring and it’s great to see a national awareness campaign that has such a positive approach. All too often we are bombarded with facts and figures. Epilepsy Action’s focus on achievements is refreshing and gives a personal touch that’s incredibly engaging.

In addition to promoting stories of personal achievement from ordinary epilepsy sufferers, Epilepsy Action also called on World Champion hurdler, Dai Greene, to recall his experiences of achieving great success whilst living with epilepsy.

epilepsy action

Dai’s story was published in an awareness supplement featured in Monday’s edition of The Guardian, which I’d highly recommend reading as it features a range of issues surrounding epilepsy including effective management of epilepsy in the workplace and in schools- read or download ‘Epilepsy Celebrating Achievement’ here.

Epilepsy is a condition which can affect just about anybody- old people, young people and fit and healthy people. The truth is you probably don’t realise the majority of sufferers have epilepsy which is why epilepsy is a condition that is worth supporting. During National Epilepsy Week why not spare half an hour to check out a local event, make a donation or just get clued up on the facts, it could really make a difference.

Top Tip: Did you know that people suffering from epilepsy can be eligible for a Disabled Persons Railcard and save up to 1/3 off rail travel. Visit www.disabledpersons-railcard.co.uk for more information.

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Purple Day 2012- Epilepsy Awareness

March 26, 2012 at 1:04 pm | Posted in Uncategorized | Leave a comment
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Today it’s Purple Day which is an international awareness day that supports epilepsy. I first became aware of Purple Day in 2011 and was stunned to discover that Purple Day was dreamt up by Canadian school girl, Cassidy Megan.

An epileptic herself, Cassidy Megan decided to create a day which would help raise the profile of epilepsy and get people talking about the condition which affects an estimated 50 million people worldwide.

To support Purple Day you simply have to wear purple on 26th March. You can wear anything from a purple cardigan, tights, socks, dresses or even paint your nails purple. It’s completely up to you. But by wearing purple you will be showing your support to the world’s most common neurological condition.

Purple Day

Celebrate Purple Day 2012

Purple Day is now a globally recognised awareness day and celebrations and events are taking place across the world. Here in the UK 12 people from the Joint Epilepsy Council (JEC) are climbing Big Ben to raise awareness of the condition. Two of those people are MP’s Laura Sandys and Paul Maynard both of whom are epileptic and hoping to get rid of the stigma which still surrounds epilepsy.

Climbing Big Ben is an incredible achievement because the 334 spiral stairs to the top have been restricted to those who suffer from epilepsy for the past 150 years. Only recently has the ban been lifted allowing today’s climb to take place.

I send all the best of luck to this year’s Purple Day and encourage everyone to check out the Purple Day website.  It’s incredibly interesting and packed with epilepsy facts which could change the way you think about epilepsy forever.

Did you know that Julius Caesar, Alexander the Great and Charles Dickens were all epileptic.

National Epilepsy Week

May 20, 2011 at 4:19 pm | Posted in Uncategorized | 2 Comments
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national epilepsy week

National Epilepsy Week is drawing to a close, and I’m sure that the week has raised awareness of the condition and brought out some brilliant fundraising ideas!

I’ve spent the week noting quick facts which you might not already know about epilepsy, and I’ve learnt new things myself. I’ve also covered charities and organisations, which dedicate their time and effort into epilepsy.

Today I would like to share UK Epilepsy.com a site which is packed with everything you need to know about epilepsy. From advice, support groups, charities, blogs and up to date research.

Go ahead and explore the site at your leisure!

Have a great weekend-

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